I learned this today from Dr. Jones, I can't believe we will eventually make it to 4000mg (@14 peanuts). I'm going to have to get creative with the dosing soon. Any ideas would be appreciated, so far we are using apple sauce or pudding every morning.
They let Madie help take her own blood today, she was switching out the vials like a pro. I can't believe how brave she is! Then she hit the centrifuge machine to spin it. If I haven't said it before, the staff in the pediatric clinical research unit at ACH are incredible, they are starting to feel like family. They make this difficult experience so much easier by connecting with the kids and keeping them involved.
The drive, however, still hasn't gotten any shorter! Oh well...
Monday, September 24, 2007
Madie's Entry September 24, 2007
Right now I'm on my way home. We left the hospital about 30 minutes ago. Today I got my dose doubled and my mouth and throat itched sooo much, but only lasted 20 minutes. This time I had to get blood taken (so cool!) and got another skin test. SOOO ITCHY!!! I'm so glad I don't have to get one every visit!
-Madie
-Madie
Thursday, September 13, 2007
The Drive...
Madie's dose has increased to 25mg, other than an ichy throat she is doing great. FYI, the drive roundtrip is 722 miles, which means I am logging 1400+ miles a month on my car, not including my daily "Mom's taxi service" routine.
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