I learned this today from Dr. Jones, I can't believe we will eventually make it to 4000mg (@14 peanuts). I'm going to have to get creative with the dosing soon. Any ideas would be appreciated, so far we are using apple sauce or pudding every morning.
They let Madie help take her own blood today, she was switching out the vials like a pro. I can't believe how brave she is! Then she hit the centrifuge machine to spin it. If I haven't said it before, the staff in the pediatric clinical research unit at ACH are incredible, they are starting to feel like family. They make this difficult experience so much easier by connecting with the kids and keeping them involved.
The drive, however, still hasn't gotten any shorter! Oh well...
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