Courage

There are days when the courage of my daughter leaves me speechless. Today was one! After several reaction free days, this morning she had a new reaction...big fat swollen lip. For any ten year old, something that effects your appearance is a BIG DEAL. I won't kid you, Madie was disappointed, but in the face of going to school looking like someone punched her in the mouth, she got dressed and headed out the door. It certainly makes me reflect on my own discomforts and realize that if a ten year old girl can go to school with a giant lip in order to save some other kid's life, whatever aches and pains I feel are nothing. Madie's courage is a lesson to us all, and also a reminder that this research study takes a great deal of EFFORT for someone who has only walked the planet for ten years.